I read an article called “How to Ease pain without Opioids? Specialists are finding Ways” by Steve Dorfman from Palm Beach Post, a staff writer. He is writing about a clinic that opened in Florida. We all know that Florida is the very worst or one of the worst states to be living with chronic pain and residing in. Does this make any sense at all to the chronic pain patients or any sane individual? The interventions that are being outlined in this article are tortuous to say the least!
This Dr. Tapia outlines several different approaches to use instead of narcotics or opioids. Why aren’t sick people who are legitimately living with daily chronic pain, allowed to take a pill like everyone else who is really sick? It has NOT been proven that cancer pain is worse than any other form of chronic pain. The CDC rebuked Andrew Kolodny when he tried to use that line on them. It just is not true. I have two family members with cancer and they told me themselves that their pain is “not that bad” and definitely not as bad as many other chronic pain illnesses. At least with most other illnesses there is an end in sight or a treatment that helps but now the chronic pain population are being forced to do painful and torturous things that are supposed to “trick our minds into believing that we feel better”. That is my opinion!
First of all, people who live with daily intractable pain, do not get high, do not abuse their pain medications and do not do anything they should not do with their medications. They use them for pain relief only! The chronic pain population should not be made to continually suffer and die because there are “bad” people who brought “bad” drugs like cara fentanyl over from South America and elsewhere! This is insane! If someone starts abusing insulin to lose weight and then people die, will they start taking insulin away from the Diabetics in America? Guess what? I bet you that won’t ever happen!
This Dr. In Florida has several approaches. He and other pain Dr’s who are now “afraid” to prescribe medication that can easily help their patients without giving them more pain on top of the chronic pain they are enduring; are calling this “Interventional Pain medicine”. They are doing some things like this: more injections (that sounds fun), nerve blocks (yep they hurt worse and then maybe help for a month, but guess what?? You cannot do that forever!!!), and what they like to call “minimally invasive outpatient surgeries. This is ludicrous and absurd!
There is this method they are doing where they take your red blood cells out (ouch) and they “spin them around in a special centrifuge machine that separates and concentrates platelets and growth factors, and then it is injected” …get this…this is the “good part”…”they INJECT IT INTO THE PAINFUL AREAS!” That sounds like something I want to try, with systemic CRPS….NOT… I’ve heard that this may help some forms of Arthritis! But what about all of the other horribly painful illnesses Like Arachnoiditis, CRPS, EDS and many others??? Then there is a high intensity laser therapy “believed by some to promote tissue healing”….yea…sorry…load of crap! They also have this recently cleared by the FDA device called NIP procedure (NIP stands for noninvasive pain). They use a microchip and acupuncture needles, placed “strategically behind the patients ear”. This technology transmits a flow of signals to the patient for as long as they are “wearing” the device (usually 4 or 5 days). Well, Ok but what about the rest of your life after 4 or 5 days??
I am talking about intractable pain, chronic pain and pain that will most likely never disappear. These kinds of treatments are asinine for these kinds of chronic pain patients. I’m sorry but taking a pill a couple times a day, that has absolutely no side effects and does not harm me in any way, is a much easier approach for those already living with daily struggles of constant pain that will not eventually disappear. These “pain interventionists” are just making a lot of money and taking advantage of the chronic pain population. I’m sorry but you cannot just “think this kind of pain away”. You cannot wear a couple of needles behind your ear and watch it “Poof” away! These are insane ideas from an insane culture who are being hysterical about opioids. Opioids have a place in the chronic and acute pain world. We need palliative of life care. We aren’t going to live as long as the “normal” person anyways. I am not an addict. I am NOT afraid of losing my pain meds, I’m more afraid of feeling the pain when it is not controlled!
My specialist physician told me the other day that “unfortunately, I am collateral damage to the hysteria that is taking place in our society today”. He’s 100% correct and I will probably not live through this again. I lost my physician 3 years ago. One day he was there and he was my Dr. For about 15 yrs. The next day he was gone without an explanation. I was caught going off meds for pain after 12 years “cold turkey”. I was very sick and my blood pressure went high, my blood sugar went high and it was torturous. Last Monday, I was told that my 100 fentanyl patch was being taken away. No tapering, just “one more month to help me get ready psychologically”. What the heck is that about? The safe way is to wean someone 10% every couple of weeks or so. On August 10th I will not be given the patch again. I was offered some other oral extended relief medication but I have Gastroparesis. In what lifetime doesn’t a pain Dr. Or any Dr. know that Oral opioids, especially extended ones, are not recommended for people who live with Gastroparesis (another painful condition)?? No one cares? I’ve written to my Senator, the president, my state rep and I’ve made videos and blog posts and news articles. Nobody cares about us anymore. Nobody cares about my life or my quality of life any longer? What happened to these United States of America?
(My information is from http://www.palmbeachpost.com May 21st, 2018 *Please go over there and post comments about your feelings regarding this.
Written by Suzanne Stewart on tearsoftruth.com
Suzanne B. Stewart
U.S. Pain Fdn. Ambassador/Advocate/Board Member, Recipient of Pain Ambassador of the Year Award‘16, Mentor for CRPS patients RSDSA, Staff Columnist/Ntl. Pain Report, Blog-“Tears Of Truth” @tearsoftruth.com, Patient leader WEGO Health, HoH/ASL
The debate over pain medication is a dominant topic in the current medical society. We hear constant news stories about opioid overdoses, people illegally selling pills and blatant misuse of medications to manage pain.
In the current political and medical climate, it is no wonder that doctors are hesitant to write prescriptions for pain medication.
I typically try to avoid controversial topics but I feel as if this topic needs to be addressed. I feel as if those who have never suffered agonizing pain are the dominating voices in this debate.
Let me first say that I am all for healthy eating, exercise, alternative and holistic therapy as the first line treatment for pain. True healthcare should seek to eliminate the source of pain instead of simply mask it with medicine. For example- With the disease of arthritis, there is much research that eliminating gluten and dairy and adding an exercise regimen lowers inflammation rates in the body and helps improve a patient’s pain level. Medical solutions such as physical therapy and holistic nutrition can help manage pain in various other diseases. Self-care, getting proper rest and hydration should also be first line solutions when trying to manage pain.
But what happens when even with the addition of the exercise, healthy food and rest a patient is still in pain?
I was this person. I was the person who tried everything possible to manage my pain to no avail. I’ve been gluten free for 7 years, dairy free for 2 years, I am in physical therapy for exercise, etc. I started having severe pain at 12 years old. I later discovered I had endometriosis. I started having chronic kidney stones and infections at 15 years old. I later discovered I have Medullary Sponge Kidneys.
I visited emergency rooms many times in my young life. I saw countless doctors. I saw every specialist available in my area. I suffered with horrible, gut wrenching agony throughout my teenage years. I missed work and school frequently.
Not one doctor ever offered pain medication to me. In my young life, I struggled with severe pain. My body was so taxed for so many years; I developed adrenal failure (Addison’s disease)
I can only help but wonder, had my pain been managed….had I had some relief….would my body ended up in the state that it is in now?
Anyone who has ever had a kidney stone will tell you it is one of the most painful experiences possible. You feel as if you are being stabbed to death. You are nauseated. Your whole body feels like it is under attack. The infections that come with chronic stones are just as painful. I was constantly in danger of becoming septic. With the endometriosis as well, my young life was filled with agony. I suffered with agonizing pain, migraines, stones, etc.
Advil was my go-to medication. Which anyone with stones will tell you…it is like eating grape jelly when you are in that much pain.Pain medication was never offered to me, because I was so young. I couldn’t possibly have been trusted with such a big responsibility a doctor once told me. I was a 4.0 GPA, straight a student, was on debate team, volunteered at church, still have yet to take even one drink of alcohol. I didn’t even drink soda as a teenager for goodness sake.
I suffered, because I was young.
There are many others that suffer because of ignorant doctors.
Now, at 24 years old, I know what is wrong with me. A doctor FINALLY looked past my age and into my symptoms. I now have to see a pain management clinic every 30 days just to get a script. I pay $60 co-pay just for “pain management.”
And that right there is something that has been silent in this debate- The concept of pain management. You see, with my health there is not one moment I am not in pain. The pain medication simply makes it on a level where I don’t absolutely lose my mind. This is not always the case; sometimes my pain is so high that the medicine doesn’t even touch it. Anyone with severe chronic pain will tell you the same story. Pain medicine is a means to cope with the agony. They do not make us feel good. They don’t even make us feel normal. They just make it to where life is a little bit less of a torture session.
Imagine how terrifying it would be to know that there is a movement that is trying to take slight relief away.
Pain medicine is not a means to get high. Any pain management patient would rather not be on medication. We would much rather live our lives without having to worry about taking pills just to move.
I was never offered pain medicine and now I suffer from adrenal failure. I will always wonder if my body not been so physically taxed would I be where I’m at in my own health.
My message is this-
If you have never been in so much pain you started bargaining with God, then you have no right to an opinion on whether pain medication should be prescribed or not.
Most of us with chronic illness do the bargaining with God conversation at least once a week. If something makes your life better, it is legal and it doesn’t harm anyone else- by all means keep that in your life.
Pain medicine does not take pain away, it is not a means to get high, it is a means to sustaining somewhat of a life. Please educate yourself before you jump on the anti-opioid bandwagon.
This post was originally published on Winslow E. Dixon
Winslow E. Dixon started her young career in geriatrics. She specialized in Alzheimer’s Disease and dementia and worked as a resident care director/memory care coordinator. She then continued her education, studying holistic health and nutrition. She worked as a holistic health coach, aromatherapist, licensed med-tech and licensed medical thermographer.
Upon her diagnosis of Medullary Sponge Kidney, Endometriosis and Addison’s Disease, she was forced to find a new purpose. Winslow is now a published author, freelance writer and journalist. She volunteers her time as an advocate for those suffering with chronic illness, rare disease and disability. She is also a motivational speaker and has dedicated her life to spreading hope to those who are suffering through her patient advocacy organization, “Adrenal Alternatives Foundation.”
In the meantime, she is a journalist and political activist for chronic illness, rare disease and holistic health. She is an avid writer and her fiction series – The EverVigilant Trilogy is the process of worldwide publication- release TBA.
For inspiration and encouragement, feel free to visit her website at-Winslowedixon.wordpress.com or follow her official author page https://www.facebook.com/winslowedixon
An open letter to my Fellow Citizens,
We need to talk. Your freedoms are at risk, your health is at risk, the health of your mother and your child are at risk. I know your life is already busy, I know you already have causes that are important to you. But this one should be on your radar as well, because no one is talking about it. If you believe the we are living in a democracy, that is no longer the case. Your fellow citizens, the most vulnerable among you, are systematically being silenced and slowly killed off by your government.
The government is actively punishing physicians who treat their patients for pain. They are forcing medical neglect, malpractice and patient abandonment. In fact they are rewarding doctors (with money of course) for tapering chronically ill patients off of their pain medications (usually against the patients will). Government officials are going even further, and infiltrating your support groups and advocacy groups to further spy on us and know exactly what we are planning in terms of “speaking up” about healthcare issues.
The local, state, and federal government is quickly and VERY quietly passing legislation that is going to risk the lives of the over 100 million chronic pain patients in our country, and anyone who needs proper healthcare.
“I’m not a chronic illness patient,” you say; Well unfortunately life is tricky and that could change in the blink of an eye, to you or someone you love. A car accident, a medical emergency- can quickly turn into you experiencing chronic, debilitating symptoms for the rest of your life.
Imagine denying a diabetic insulin, simply because it has the possibility to be abused, when 99% of diabetics take their insulin responsibly. It doesn’t make sense does it? But it’s happening to legitimate chronic pain patients- who didn’t ask for their diseases any more than a diabetic would ask for theirs. So why are we being punished? Why are cancer patients and people with disabilities being denied proper treatment?
Prescribing of opioid medication is down 65% since 2016, and yet the opioid epidemic is at an all time high, so how can that be??? It’s because the opioids that people are abusing and overdosing on aren’t coming from a doctors office, they’re coming over our borders. Certain illegal groups that I won't name for my own safety, have ‘pill presses’ and they will press designer street drugs to “look” like prescription medication (such as benzos or pain pills); but they are far deadlier than the real thing. They are being laced with ‘carfentanyl’, which is a designer street drug and has never been used in a medical setting. A few grains of this designer drug is lethal. Synthetic Opioids are the ones driving this issue- not something coming from a prescription pad. The CDC has also admitting to severely over inflating the numbers of ‘opioid overdoses’, to further their agenda to get doctors to stop prescribing- the number of overdoses in 2016 REALLY being 14,000, not the 65,000+ they originally stated. They are lying to you to further their own agendas.
The increased pressure that doctors are facing are leading to devastating consequences for patients- and not just those with chronic illnesses. Patients across the country are being forced into surgeries not just without pain management, but without ANESTHETICS. That means the next time you go to the hospital for a medical emergency, you may not receive proper care or experience a case of malpractice, because the media has misinformed the public about what is really going on in our country.
Suicides are rampant for people who experience chronic pain. People are being told to simply “accept” their pain and that's the only way to treat pain. People with serious, debilitating medical issues are being told to accept and pray for their pain to go away. This is leading to an alarmingly high rate of suicide in the chronic illness community. Over 50 people a day are taking their lives or dying because of untreated pain, which can cause MI, Strokes, Seizures and many more scary issues. Pharmacists and large chain pharmacies are further abusing patients by not filling valid prescriptions by doctors.
What can you do to help this? You can call, write, and email your legislators. Tell them to protect patients rights to pain management and palliative care, especially for the chronically ill and disabled. Secondly you can educate yourself on what’s really going on in this country and how patients are being tortured and denied treatment right under your noses. I will leave links in the comments for you to watch/read. Lastly, you can include people with disabilities and chronic illnesses in your social justice movements. WE are often to sick to attend marches and rallies and meetings ourselves, so it’s important for you as able bodied individuals to REMEMBER us and stick up for all of our rights to proper healthcare and pain management.
Please share and speak up about patients not receiving proper treatment. A genocide is happening right under your noses and no one is paying attention. Please don’t let them kill us off quietly. #PainKills
Please help us, we matter.
Chronic Pain Patients